Category CFDとは (About CFD)
メモ程度に。
Just a note.
Leoは血中の葉酸値が正常なのに、髄液の葉酸値が正常の範囲内だか下限に近い。だからCFD(脳葉酸欠乏症)の可能性大と診断され、髄液の葉酸を補うLeucovorinを飲んでいたが効果なし。だから一週間前に飲むのをやめた。
やめても変化なし。
Leo's folate acid level in his blood is normal but close to the lowest range in the cerebrospinal fluid (CSF). This is the reason why he has cerebral folate deficiency (CFD) and was taking Leucovorin, which supplements the folate acid in CSF. But no signs of improvement so far, so we stopped the medication a week ago. Honestly no change since then.
だから、CFDであるかないか確かめるために、今日Leoの血を採った。
Thus, in order to make sure if he has CFD, he got his blood taken today.
FR抗体検査というみたい。
Is is for Folate Receptor (FR) antibody assay.
通常血液から髄液に葉酸は問題なく行く。しかしCFD患者はその葉酸レセプターを阻害する抗体をもっている。
Usually folate acid goes through blood-brain barrier without any problem. But CFD patients have antibody that prevents it.
今回はその抗体があるかないかの検査。
And this is the test to determine if he has FR antiboby.
あればCFD確定。
なければCFDではないことが確定。
If yes, he has CFD.
Otherwise, he is not CFD.
こういう検査があることは、NY在住の医療関係に携る大変親切な読者の方から教えてもらいました。大変ありがとうございました。SUNYではなく、アトランタにある提携Labに送られました。
A kind viewer of this blog, who works at a hospital lab in New York, told me about the test. Thank you very much for the information. His blood was not sent to SUNY but to a lab in Atlanta that has partnership with the hospital Leo goes to.
結果が出次第アップします。
I will update the results here.
CFDでないときはブログのタイトル変えないと…
I guess, if not CFD, I need to change the blog title...
そしてまた原因を探す毎日…
And that brings us back to the beginning of a long journey to seek the root cause of his symptoms...
Leo。
Leo.
ずっと痛い思いばかりさせてゴメンね…
So sorry to have given you a lot of pain to go through those tests...
今日も泣かずに採血に耐えてくれて…
You did bear the blood work without a single drop of tears...
胸が詰まります…
I hardly manage to see you doing that.
Just a note.
Leoは血中の葉酸値が正常なのに、髄液の葉酸値が正常の範囲内だか下限に近い。だからCFD(脳葉酸欠乏症)の可能性大と診断され、髄液の葉酸を補うLeucovorinを飲んでいたが効果なし。だから一週間前に飲むのをやめた。
やめても変化なし。
Leo's folate acid level in his blood is normal but close to the lowest range in the cerebrospinal fluid (CSF). This is the reason why he has cerebral folate deficiency (CFD) and was taking Leucovorin, which supplements the folate acid in CSF. But no signs of improvement so far, so we stopped the medication a week ago. Honestly no change since then.
だから、CFDであるかないか確かめるために、今日Leoの血を採った。
Thus, in order to make sure if he has CFD, he got his blood taken today.
FR抗体検査というみたい。
Is is for Folate Receptor (FR) antibody assay.
通常血液から髄液に葉酸は問題なく行く。しかしCFD患者はその葉酸レセプターを阻害する抗体をもっている。
Usually folate acid goes through blood-brain barrier without any problem. But CFD patients have antibody that prevents it.
今回はその抗体があるかないかの検査。
And this is the test to determine if he has FR antiboby.
あればCFD確定。
なければCFDではないことが確定。
If yes, he has CFD.
Otherwise, he is not CFD.
こういう検査があることは、NY在住の医療関係に携る大変親切な読者の方から教えてもらいました。大変ありがとうございました。SUNYではなく、アトランタにある提携Labに送られました。
A kind viewer of this blog, who works at a hospital lab in New York, told me about the test. Thank you very much for the information. His blood was not sent to SUNY but to a lab in Atlanta that has partnership with the hospital Leo goes to.
結果が出次第アップします。
I will update the results here.
CFDでないときはブログのタイトル変えないと…
I guess, if not CFD, I need to change the blog title...
そしてまた原因を探す毎日…
And that brings us back to the beginning of a long journey to seek the root cause of his symptoms...
Leo。
Leo.
ずっと痛い思いばかりさせてゴメンね…
So sorry to have given you a lot of pain to go through those tests...
今日も泣かずに採血に耐えてくれて…
You did bear the blood work without a single drop of tears...
胸が詰まります…
I hardly manage to see you doing that.
