Category つぶやき (Tweets)
今夜中の1時。今日はLeoの夜泣きがひどい。風邪でたんがノドに詰まっても、筋肉の
コントロールが出来ず、あまり上手くせきができないからか…お腹に力が入らないから、慢性的に便秘でガスが溜まっているのか…
It is 1:00 AM now. Leo keeps crying. Maybe nasal congestion? Phlegm? Constipation? Gas? Because of CFD (Cerebral Folate Deficiency), he has hard time getting phlegm out, controlling coughing, and due to muscle weakness in the trunk area, he is always constipated.
言葉が出ないから、
ただひたすら泣いて訴えるしかないんだろうけど
ホント、分かってあげられなくてゴメン…
子供が一生懸命泣いて訴えてるのに
分かってあげられない。こういう時が
正直つらい。ただただこっちも
泣いて抱きしめるしかできない。
もうちょっと言葉がでれば分かるんだけど…
少しづつ練習していこうね。
But the worst is he cannot tell us what's wrong verbally and the only way is just crying hard. It is just too tough to see your son in pain, but you don't know why exactly he cannot talk. The only thing I can do now is to hold him tight and cry together, repeatedly saying sorry, sorry, and sorry... Well, Leo. We need to practice more together, so let's reduce the situations like this little by little, ok?
コントロールが出来ず、あまり上手くせきができないからか…お腹に力が入らないから、慢性的に便秘でガスが溜まっているのか…
It is 1:00 AM now. Leo keeps crying. Maybe nasal congestion? Phlegm? Constipation? Gas? Because of CFD (Cerebral Folate Deficiency), he has hard time getting phlegm out, controlling coughing, and due to muscle weakness in the trunk area, he is always constipated.
言葉が出ないから、
ただひたすら泣いて訴えるしかないんだろうけど
ホント、分かってあげられなくてゴメン…
子供が一生懸命泣いて訴えてるのに
分かってあげられない。こういう時が
正直つらい。ただただこっちも
泣いて抱きしめるしかできない。
もうちょっと言葉がでれば分かるんだけど…
少しづつ練習していこうね。
But the worst is he cannot tell us what's wrong verbally and the only way is just crying hard. It is just too tough to see your son in pain, but you don't know why exactly he cannot talk. The only thing I can do now is to hold him tight and cry together, repeatedly saying sorry, sorry, and sorry... Well, Leo. We need to practice more together, so let's reduce the situations like this little by little, ok?
