His Beautiful Smiles

Searching Cure for Progressive Degenerative Disease

 

進行が止まらない…(Getting Worse...)


Edit Category CFDとは (About CFD)
最近のLeoはまた少しずつだけど悪くなってるような気がする。4ヶ月前にLeucovorin一日5mgから始めたときは、たまに自分で立ち上がるほど調子がよくなった時もあったのに…今はハイハイもままならない。2ヶ月前に10mgに、1ヶ月前に15mgに薬の量を増やしてからのような気が…試しに10mgか5mgに戻してみようかな。

I feel like Leo is having harder time controlling his body nowadays. We started Leucovorn medication 5mg/day and back then, he was even standing up by himself for a short period. But now he cannot even crawl well. We increased the drug to 10mg 2 months ago, and also to 15mg a month ago. Seems like he got worse after we increased the amount. So maybe we want to put it back to 10mg or 5mg?

動かない身体に悲しそうな顔をするLeoをこれ以上見れない。何か出来ることがないか?他に何かないのか?そう言っている間にも、症状はどんどん進行している。それを目の前にして何もしてやれない。悔しい、ただただ情けない…

He often makes sad face. He is frustrated with his body too. I have hard time looking at him like that. Is there anything else I can do to help him? While asking questions like that, his symptoms are getting worse rapidly. I realize not much I can do... Frustration makes me feel miserable...

まずはこの風邪を治さないと…

Well, I need to recover from this cold first to move on...

お雛さまの日だけど (Girl's Day, But ...)


Edit Category つぶやき (Tweets)
今だに風邪でダウン中…今日は何もしてられなくてゴメンね~、Sena…早く元気になるからね。
I am still in bed due to this severe cold. I know it is Girl's Day in Japan, but I am not able to do anything for you, Sena. I promise I will get better soon, so wait for a bit, OK, Sena?

 
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プロフィール (Profile)
カリフォルニア・サンディエゴ郊外在住。失調症の息子のことを中心に、日米の障害児事情の比較や、ふと思ったことなどを書いてます。コメント、TBフリーです。

From San Diego, CA. Topics on my son with ataxic CP, US-Japan comparison on physically-challenged children, and just some tweets from life. Comments welcome.

leosena

Author:leosena
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